Story Time: How My 2 Year Old Son Was Diagnosed With Cancer, Acute Myeloid Leukemia
After Their Two-Year-Old Son Died During His Nap, These Parents Are Sharing Their Story To Warn Others
Every day, Kim Hunter brought her two-year-old son, Rocco, to pre-school and laid him down for a nap in the afternoon. Kim says July 9 started off like any other day. Rocco would always roll out of bed with lots of energy and would say, "School mommy!"
"It was a normal day. He woke up with a cold but was basically fine. I gave him some Calpol [children's acetaminophen] and he went to the nursery," Kim remembers.
According to theMirror, staff at the pre-school even told Kim that Rocco had his "best day ever" painting and playing with bubbles. But the day quickly turned into a nightmare after Kim put Rocco down for a nap around 1 p.m. that afternoon.
"[About] 45 minutes later, I checked on him and he was fine," Kim says. "But at 4 p.m. I went to see him. He was blue. He was dead."
Kim immediately took Rocco to a neighbor's house where paramedics tried to save him and was then rushed to the hospital. At the hospital, Rocco was declared dead. Doctors concluded that little Rocco had suffered a deadly febrile convulsion—a seizure triggered by a high temperature. Rocco had been hospitalized previously for convulsing after getting a virus. But this time, it was too late to save him.
"We were told he would have gone quickly, painlessly. We were devastated," Kim says. "He had suffered two febrile convulsions before—one at 14 months and one 12 weeks before his death, but we did not realize they could be fatal."
At first, Kim blamed herself for her son's death. But soon she began reading about other children who had died or been injured as a result of febrile convulsions and realized there was nothing she could have done. Kim says Rocco had not made any alarming sounds when he was dying, which made it impossible to know that he needed help.
"The seizure could have come at anytime. He could have been gone at anytime," Kim says. "But to think my boy was dying right above me is absolutely heart-shattering...I have always been a mom that checks on my children when asleep and have a monitor to detect sound, with an added camera. I was only feet away downstairs and heard nothing."
Despite the grief Rocco's family is experiencing, they are hoping to raise awareness of the condition and give money to give seizure-motion monitors to parents who have children with a similar history.
"Our lives will never be the same again, but I intend to stop other parents from having to go through what we have endured," Kim says.
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